Friday, January 25, 2013

10 days

Motility testing in 10 days. I have been counting down the months, weeks, and now days since September. I am hoping and praying we will get some answers from his motility testing. This poor boy needs some sort of relief. He needs relief from the constant pain of chronic constipation, the pain and nausea, relief from monthly (or more) tube changes because reverse motility keeps coiling his j tube. Most of this evening was spent cuddled on the couch trying to find some relief from the pain and retching. Hoping tomorrow is a better day.

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